where is aca
bg1os at earthlink.net
Wed Jul 4 13:59:52 PDT 2001
At 03:26 PM 7/4/2001 -0400, Tony Barr wrote:
> It clears the air that ACA should change their mission statement and notify
> their members of their modification!:)
> ACA Mission:
> To reach out to people with limb loss,to empower them through education and
> support, to ADVOCATE on their behalf and to develop and disseminate the
> resources to accomplish this.
> This is crystal clear to me!
Thanks, Tony. You saved me a few words :-)
After Florencio Hooker wrote:
> >The ACA'S mission has declared, is not one of consumer advocacy. One of the
> missions clearly
>stated is to empower the amputee community with information and resources -
>Federal, State, etc - to seek their particular needs, wants or lack thereof.
Well, I don't really think they're paying a lobbyist to simply write their
pamphlets, so what's the deal?
I am glad that your experience with the ACA has been, to date, valuable. This
early relationship with the organization is often deemed worthwhile, and, if
you're really lucky, have good insurance, a capable prosthetist and appropriate
equipment, may suit you well for a long time. The number of us who are lacking
in any of those departments are, unfortunately, larger than the number who are
not. And when we waste our time and energy trying to get an organization that
presumes to help us in these departments to live up to their promise and then
they say "oops...not our job", well, we get a bit testy.
Please understand that the questions being raised here in this thread are
coming from other amputees, many of whom were members at one time, many of whom
got their initial answers from the organization. But many of us are finding out
that the organization, while still wanting us to remain members, refuses to
grow with us and address the issues that we come across after we find a support
group and learn what componentry is.
As noted above, the mission statement clearly uses terms like "support",
"advocate" and "empower". The information dissemination is not being
questioned...it's the rest of the statement that is not being lived up to. That
is what we are questioning. If it does not apply to you, so be it. But it does
apply to many of us, and we need to use any means necessary to try to better
our lives in toto. Talking with other amputees about the good, the bad and the
ugly is the best way to achieve this goal.
This is a discussion, not a mandate. No one who disagrees with the ACA
detractors is being asked to change their mind. No one has asked that you turn
in your card. If this thread is of no interest to you, that's fine---there are
plenty of threads I tire of also. But considering the length of and passion
forthcoming in this discussion and similar ones on other lists and in other
forums (or is it fora?), there is enough interest in it from the amputee
community to warrant the bandwidth.
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