neuromas/Roberta

Roberta Wynn tunabuna at comcast.net
Tue Mar 16 19:33:28 PST 2004


good luck!
  ----- Original Message ----- 
  From: JACOB CALLAWAY 
  To: Amputee Information Network 
  Sent: Tuesday, March 16, 2004 8:02 PM
  Subject: Re: neuromas/Roberta


  Roberta,
   Well, we will see Thursday, you were the only one to answer, thank you.
  Jake
    ----- Original Message ----- 
    From: Roberta Wynn 
    To: Amputee Information Network 
    Sent: Tuesday, March 16, 2004 8:53 PM
    Subject: Re: neuromas/Roberta


    I hate to say this but it IS extremely painful because they have to inject the medication right into the nerve.  that's how they could tell whether or not it was a neuroma.  I think they injected lanocane or whatever it is that dentists use to numb your mouth, and then they injected a steroid,  It really did feel better for a couple of weeks, but then it came back.  they did that with both neuromas.  only after that did they do surgery.  It gets to the point though that the neuroma hurt worse than the injection.  it took me a while to decide to have the injection again on my second one.  I had my first one two years after the amp, and my second one three years after that.
      ----- Original Message ----- 
      From: Carolyn Murphy 
      To: Amputee Information Network 
      Sent: Tuesday, March 16, 2004 4:45 PM
      Subject: Re: neuromas/Roberta


      Hi Roberta,

      I hope you don't mind me jumping in here, but I have nerve pain (not sure if it is a neuroma, or what the problem is) on my left side, and wanted to ask you if the injection you received into the nerve was painful?  I was considering having this done, but was told it was extremely painful.  Do you remember what the injection was?  Thanks.  Carolyn



      >From: "Roberta Wynn" 
      >Reply-To: amp-l at u.washington.edu 
      >To: "Amputee Information Network" 
      >Subject: Re: neuromas 
      >Date: Tue, 16 Mar 2004 15:52:19 -0700 
      > 
      >well, it sounds plenty big enough to remove.  you might want to see the surgeon first and have him check it out.  if you do have to have surgery, you'll probably want to let it heal before getting a new socket.  just make sure the surgeon is good and has worked on neuromas before. 
      >   ----- Original Message ----- 
      >   From: JACOB CALLAWAY 
      >   To: Amputee Information Network 
      >   Sent: Tuesday, March 16, 2004 3:09 PM 
      >   Subject: Re: neuromas 
      > 
      > 
      >   Hi Roberta, 
      >   Well the spot I am talking about is the size of say a goose egg, I am home early today because of it. When I left this morning it felt fine at 7am 
      >   at about 8:30 I had to pull down my Wranglers and take off the leg and rub the spot, could feel every part of the amputated part, toes ect. the stump was real white and cold like I was not getting blood.After a bit it turned lite purple again like I had a lot of blood there. I added a 1 mil sock and it felt fine. However when I got on my bulldozer not even walking but using the leg working the  dozer I had to stop and remove the leg again in about 1hr. I feel I have a sorry fit in the prosthetic, but when I stop walking around and start driving or what ever it really starts to hurt! I'm going to see the CP next week and am trying to find out as much from you guys as I can before I confront him about a new socket. He is on contract from Veterans Administration and already been paid to take care of my problems for 1 year. You know I wonder if he has already been paid is he giving me the best deal? I also have an appointment coming up with ! Orthopedic surgeon something is not right. I started out wearing the prosthetic every day 12,14 hrs. for about 21/2 months it seemed I could do more and more every day but then started to go down hill. 
      >     ----- Original Message ----- 
      >     From: Roberta Wynn 
      >     To: Amputee Information Network 
      >     Sent: Tuesday, March 16, 2004 3:37 PM 
      >     Subject: Re: neuromas 
      > 
      > 
      >     it can be surgically removed if it's big enough.  I've had two removed.  First they had to make sure it's a neuroma.  I went to my orthopedic surgeon and he shot some stuff directly into the nerve.  if the pain went away for a while and then came back it was a neuroma.  if it isn't big enough, it's like looking for a needle in a haystack because there are lots and lots to choose from and they may not be able to find the right one.  mine were fairly large so it was no problem. 
      >       ----- Original Message ----- 
      >       From: JACOB CALLAWAY 
      >       To: Amputee Information Network 
      >       Sent: Tuesday, March 16, 2004 3:31 AM 
      >       Subject: neuromas 
      > 
      > 
      >       Hello everyone, 
      >       Back again, I seem to be having a problem with a neuroma on the left side of my stump,BKL, just below the pressure point there, maybe a little into the pressure point. I have to stop and remove the prosthesis and massage the stump about every hour somedays, when the weather is changing seems to be he worst! If I add a sock that helps for a while,but then if I get off the leg and start driving it seems to become worse yet, walk a while and it calms down. What can I do about the neuroma? Can it be surgically taken care of ? What? 
      >       Thanks Jake, 


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