[PHSW] [Fwd: [HLIB-NW] NN/LM Dragonfly: Empowering Parents of
Children with Special Health Care Needs]
larsson at u.washington.edu
Mon May 12 16:12:55 PDT 2003
Last year I sent out some announcements from the National Library of
Medicine and the National Networks of Libraries of Medicine about
funding for access to electronic health information. Here is one of the
projects that was funded.
For PHNWHEALTH folks, this is Margo Harris's and colleagues project. For
the other lists, I wanted you to see that NLM funding goes to public
health folks doing remarkable work as well as to librarians doing
outreach in public health. Please consider applying for these grants
when the announcement comes out later this year.
-------- Original Message --------
Subject: [HLIB-NW] NN/LM Dragonfly: Empowering Parents of Children with
Special Health Care Needs
Date: Mon, 12 May 2003 15:17:39 -0700 (PDT)
From: NNLM PNR <nnlm at u.washington.edu>
To: pnrnews at u.washington.edu, HLIB-NW <hlib-nw at u.washington.edu>
Focus on Funding Series.
Part III: Empowering Parents of Children with Special Health Care Needs
By Gail Kouame
Consumer Health Coordinator, NN/LM PNR
This is the third in a series of articles highlighting five projects in
the Pacific Northwest Region emphasizing Access to Electronic Health
Information. The projects received funding from the National Library of
Medicine (NLM) with a maximum award of $40,000. For further information
about funding opportunities, visit our web site at:
Empowering Parents of Children with Special Health Care Needs
The lead agency for this project is the Center for Children with Special
Needs at Childrens Hospital and Regional Medical Center in Seattle,
Washington. Children with special health care needs are those with chronic
physical, developmental, behavioral or emotional conditions that require
health services beyond those required by children generally.
The purpose of this project is to train parents of children with special
health care needs to advance their skills and abilities in using the
Internet to seek health information and resources. Parents of these
children continually express the need for current, reliable information
and to understand and be informed about resources locally, nationally, and
internationally that will assist them in providing care, advocating for
their children, and monitoring emerging health care research. In
partnership with the Washington State Fathers Network and Washington State
Parent to Parent Support Programs, the Center for Children with Special
Needs will develop a skills-based train-the-trainer curriculum with parent
input that will provide the basis for the Internet training on accessing
health information and resources.
The overall goal of the project is to train parents of children with
special health care needs to advance their skills and abilities in using
the Internet to seek health information and resources. In order to
accomplish this goal, project partners will:
*Develop Internet training curriculum for train-the-trainer sessions with
target audience members involved in the design process.
*Deliver two English and one Spanish six-hour train-the-trainer sessions
for parent coordinators who will attend the workshops with community-based
librarians. The librarians and parent coordinators will serve as a
continuing resource in each region at the conclusion of the project.
*Facilitate and support parent coordinator delivery of 10 community-based
training sessions to share the skills and resources with parents of
Children with Special Health Care Needs.
To learn more about the partnering agencies in this project, please visit
their web pages:
Center for Children with Special Health Needs - http://www.cshcn.org/
Washington State Fathers Network - http://www.fathersnetwork.org/707.html
Washington State Parent to Parent Support Programs-
Dragonfly, Spring 2003- Volume 34 Number 2
Dragonfly is the newsletter of the National Network of Libraries of
Medicine, Pacific Northwest Region. Produced by NN/LM PNR, under NLM
Contract N01-LM-1-3516. Maryanne Blake, Editor, blakema at u.washington.edu.
Michael Boer, Publication Manager, boerm at u.washington.edu. Dragonfly
is transmitted by e-mail via HLIB-NW and PNRNews.
This and all Dragonfly articles are best viewed on the World Wide Web at:
HLIB-NW mailing list
HLIB-NW at u.washington.edu
Information Content Manager
Digital Assets Manager
Online Learning Developer
Information Appliance/PDA Trainer
Health Services, Box 357660
University of Washington
Seattle, WA 98195
larsson at u.washington.edu
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"The illiterate of the 21st century will not be those who cannot read and write, but those who cannot learn, unlearn, and relearn. " Alvin Toffler
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"The master in the art of living makes little distinction between his work and his play, his labor and his leisure, his mind and his body, his information and his recreation, his love and his religion. He hardly knows which is which. He simply pursues his vision of excellence at whatever he does, leaving others to decide whether he is working or playing. To him he's always doing both." James Michener
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