Need Info: National Leigh's Disease Foundation

[Margo Harris]

Hi Jennifer - I like to think that NORD (National Organization for Rare Disorders) stays up-to-date, but they don't list a National Leigh's Disease Foundation.  Maybe one of the other organizations listed has taken over that role.  Margo

http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Leigh%27s%20Disease

Margo Harris
Seattle, WA
206/932-1273
Email: margo at pnwhealth.com
Internet: www.pnwhealth.com
PNW SOPHE Job Bank: www.pnwhealth.com/jobbank.htm
"I know God won't give me anything I can't handle.
I just wish (s)he didn't trust me so much."  Mother Theresa
  ----- Original Message ----- 
  From: Burris, Jennifer 
  To: Pacific Northwest Health Educators 
  Sent: Monday, June 24, 2002 2:31 PM
  Subject: Need Info: National Leigh's Disease Foundation


  Does anyone know if the National Leigh's Disease Foundation (NLDF) is still in existence? All contact information I have found online or in my files is all out of service. and I thought I'd try some listservs before getting rid of my files.

   

  Jenny Burris

  Family Resource Center

  206.517.2471  Mailstop CH-14

  Children's Hospital and Regional Medical Center

  www.seattlechildrens.org

   

-------------- next part --------------
An HTML attachment was scrubbed...
URL: http://mailman1.u.washington.edu/pipermail/pnwhealth/attachments/20020624/d79dc733/attachment.htm