Need Info: National Leigh's Disease Foundation
margo at pnwhealth.com
Mon Jun 24 16:37:17 PDT 2002
Hi Jennifer - I like to think that NORD (National Organization for Rare Disorders) stays up-to-date, but they don't list a National Leigh's Disease Foundation. Maybe one of the other organizations listed has taken over that role. Margo
Email: margo at pnwhealth.com
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----- Original Message -----
From: Burris, Jennifer
To: Pacific Northwest Health Educators
Sent: Monday, June 24, 2002 2:31 PM
Subject: Need Info: National Leigh's Disease Foundation
Does anyone know if the National Leigh's Disease Foundation (NLDF) is still in existence? All contact information I have found online or in my files is all out of service. and I thought I'd try some listservs before getting rid of my files.
Family Resource Center
206.517.2471 Mailstop CH-14
Children's Hospital and Regional Medical Center
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