FYI: Special Focus: 6th Annual Family Conference on Cerebral Palsy and Related Disabilities

[Ginettep]

 thought that the following UCP article may be of interest to some of you.

	Special Focus: 6th Annual Family Conference on Cerebral Palsy and Related
Disabilities
	http://www.ucp.org/ucp_localdoc.cfm/129/9328/9328/9328-9328/2398

_________________________________________________

Special Focus
6th Annual Family Conference on Cerebral Palsy and Related Disabilities


United Cerebral Palsy Association of Oregon and SW Washington
invites you to our
6th ANNUAL FAMILY CONFERENCE on CEREBRAL PALSY and RELATED DISABILITIES
November 2-3, 2001
Holiday Inn Select
Wilsonville, OR

General Information:

Location:
Holiday Inn Select – Portland South
25425 S.W. 95th Avenue
Wilsonville, OR 97070
503-682-2211

Accommodations:
A block of rooms has been reserved at the Holiday Inn South for conference
participants at a special rate of $79.00, single or double occupancy.
Reservations must be made directly with the hotel prior to October 25, 2001,
for this special rate.

Childcare: Not Provided

Registration Fee:
Fees listed below include conference sessions & lunch. Friday’s lunch
coincides with UCP’s Annual Meeting. The first 150 registrations are
guaranteed seating at the luncheon meeting. Others may be seated in another
room for lunch.

Scholarship Information:
A limited number of scholarships for family members and self-advocates are
available.

Continuing Education:
One Credit or 10 Clock Hours are being offered cooperatively by UCP and
Portland State University, Continuing Education/School of Education with the
School of Extended Studies. Grading is Fall Term. Course Number is K2325B.
Enrollment is limited to 8 credits per term unless officially admitted to
PSU (except Summer Term when reenrollment is limited to 16 graduate/21
undergraduate credits).

Refunds/Cancellations:
Cancellation requests for refunds must be submitted in writing by October
19, 2001. Refunds will be given, minus a $20.00 service charge. Refund
checks will be issued after the conference.


Conference Schedule:



FRIDAY, NOVEMBER 2nd
8:00-8:30 Registration
8:30-10:00 "Sense of Belonging"
Deborah Aman, a primary full inclusion educator in Anchorage, Alaska,
presents this keynote address, which explores the environmental
characteristics that promote interactions among typically developing
children, and children certified as needing special services.

10:00-10:15 Break

Session1
10:15-11:45 A. Medical – The Young Child
Dr. Budden discusses the medical aspects of how cerebral palsy impacts the
young child.
B.Software Selection
Have you ever wondered what computer programs would work for your child?
Emily Smith shares many ideas, ranging from the very basics to specialty
software.
C.The Down & Dirty of Inclusion
Did the morning keynote address make you curious about what to do next?
Deborah Aman talks with you about the nuts & bolts that have worked for her
in the classroom.
D.Understanding Guardianship
If your child is reaching the age of majority, and you have not explored the
issue of guardianship, you need to attend this session. Elaine
Friesen-Strang discusses the most frequently asked questions.
12:00-1:45 UCP Annual Meeting Luncheon
Featuring speaker Janna Starr, Executive Director of Oregon Council on
Developmental Disabilities, former Arc of Oregon Executive Director, UCPA
National and Brain Injury Association Policy Analyst.

1:45-2:00 Break

Session2
2:00-3:30 A.Medical – The School Age Years
Dr. Blasco shares information on: tone management, weight management,
puberty, scoliosis/kyphosis, changes in diagnoses and much more.
B.Achieving Language & Literacy Skills with Children with Developmental
Disabilities
Jane Murphy demonstrates how literacy experiences provide information and
ultimately more knowledge of the world when a child is introduced to
multi-sensory learning strategies and adapted technology.
C.So You Want to Go to College!
College is VERY different from high school. The laws are different, the
procedures are different and the accommodations are different. Dianne
Sherlock reveals the tricks on making a smooth transition from high school
to college.
D.Parents Panel
Amie Sanders, Jim Mason and Linda Hansen share each of their family’s
challenges and triumphs, in raising a child with cerebral palsy.


SATURDAY, NOVEMBER 3rd
8:00-9:00 Registration

Session3
9:00-10:30 A.What about me? Siblings of children with special needs
Colleen Moloney leads a discussion about the desires, fears, concerns and
needs of brothers and sisters of children with special needs. Come gather
information about what adults need to know and how they can help.
B.Dad’s Group
Join in on a very frank discussion of issues that affect dads. (A group only
for men.)
C.Positioning for Participation
Therapists from Shriners Hospital discuss different positioning options for
children, with an emphasis on participation and interaction with their peers
and family.
D.Spasticity Management
Dr. Russman provides up-to-date information on the accepted methods of
managing spasticity.

10:30-10:45 Break

Session4
10:45-12:15 A.Growing Up with Cerebral Palsy
Young Adults share, through their life stories, what it is like to have
cerebral palsy.
B.Recreation
Learn about the inclusion program and how to advocate for your child’s
inclusion in Parks and Recreation activities in your community. Tips on
adaptations are also shared.
C.Assistive Technology Basics – An Introduction
Do you get lost in the terminology and myriad of options for assistive
technology? In this session we discuss very basic concepts, and introductory
steps to implement simple technology. We also explore what is available in
the high tech realm.
D.Neurology of Behavior with Cerebral Palsy
Dr. Konkol shares the Neurobiology of neural behavior. Areas addressed are:
diagnosis, medication and implecation.

12:15-2:00 Cracker Barrel Lunch

Session5
2:00-3:30 A.Mom’s Group
Join in on a very frank discussion of issues that affect moms. (A group only
for women.)
B.Where do we go from here?
Is your child getting ready to leave high school? Do they know what they
want to do? This session covers important areas such as: ITP’s, options
(higher education, jobs, etc.,) and resources available to help in
transitioning to adult life.
C.Understanding the G.I. System
Have a better understanding that brain injury affects intestinal function by
examing the common GI conditions associated with cerebral palsy. Including
swallowing problems, gastroesophageal reflux and constipation.
D.System Change
In only four years, Oregon’s developmental disabilities service system has
gone from one marked by a large institution (with an even larger wait list),
to one with no large institution and an entitlement to services. The
entitlement is not an unlimited one. This session discusses “Universal
Access”, where it came from, its implementation, funding, and how you can
use it to access services for yourself or for a family member.

Registration Fees:

Family members and individuals with cerebral palsy OR medical
residents/trainees/students:
One Day: $45.00 per person
Two Day: $60.00 per person

Educators, medical and other professionals:
One Day: $55.00 per person
Two Day: $75.00 per person

Academic Credit (includes registration fee):
Undergraduate Credit: $145.00
Graduate Credit: $205.00


Attendees may register for one topic within each session.

To register, contact Helene Tolliver at 503-777-4166, or via e-mail at
htolliver at ucpaorwa.org